Feudtner Laboratory Publications

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Below is a list of selected publications from the Feudtner Lab. For a full list, please visit PubMed.

Trust in Physicians, Anxiety and Depression, and Decision-Making Preferences among Parents of Children with Serious Illness
J Palliat Med · September, 2021
Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data
JAMA Netw Open · August, 2021
Pediatric palliative care parents' distress, financial difficulty, and child symptoms
J Pain Symptom Manage · August, 2021
An Interprofessional Team-Based Intervention to Address Barriers to Initiating Palliative Care in Pediatric Oncology: A Multiple-Method Evaluation of Feasibility, Acceptability, and Impact
J Pain Symptom Manage · June, 2021
Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach
BMC Palliat Care · January, 2021
What Do Parents Value Regarding Pediatric Palliative and Hospice Care in the Home Setting?
J Pain Symptom Manage · January, 2021
The Association of Perceived Social Support with Anxiety over Time in Parents of Children with Serious Illnesses
J Palliat Med · April, 2020
Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital
Acad Pediatr · January, 2020
Teamwork When Conducting Family Meetings: Concepts, Terminology, and the Importance of Team-Team Practices
J Pain Symptom Manage · August, 2019
Interprofessional Team Member Communication Patterns, Teamwork, and Collaboration in Pre-family Meeting Huddles in a Pediatric Cardiac Intensive Care Unit
J Pain Symptom Manage · July, 2019
Seven Types of Uncertainty when Clinicians Care for Pediatric Patients with Advanced Cancer
J Pain Symptom Manage · January, 2019
Controller adherence following hospital discharge in high risk children: A pilot randomized trial of text message reminders
J Asthma · January, 2019
Changes Over Time in Good-Parent Beliefs Among Parents of Children With Serious Illness: A Two-Year Cohort Study
J Pain Symptom Manage · January, 2019
The codesign of an interdisciplinary team-based intervention regarding initiating palliative care in pediatric oncology
Support Care Cancer · September, 2018
Pediatric Oncology Providers' Perceptions of a Palliative Care Service: The Influence of Emotional Esteem and Emotional Labor
J Pain Symptom Manage · May, 2018
Comparative Safety of Morphine Delivered via Intravenous Route vs. Patient-Controlled Analgesia Device for Pediatric Inpatients
J Pain Symptom Manage · May, 2017
Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two-Year Cohort Study
J Pain Symptom Manage · May, 2017
Children's Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy
J Empir Res Hum Res Ethics · April, 2017
Parent Coping Support Interventions During Acute Pediatric Hospitalizations: A Meta-Analysis
Pediatrics · January, 2017
Parent and Child Perceptions of the Benefits of Research Participation
IRB · July, 2016

Books

Feudtner, C. Bittersweet: Diabetes, Insulin, and the Transformation of Illness. 2003: The University of North Carolina Press; Chapel Hill and London.