Pathways to ASD Diagnosis

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The purpose of the study is to learn more about the experience of caregivers who have a child diagnosed with autism. We also want to better understand what is working well in healthcare in the US. This study is open to primary caregivers of a child (aged 3-17) who has been diagnosed with autism spectrum disorder in the last year. Participants must have immigrated to the US and identify as Hispanic or Latinx. Study staff will interview participants about their experiences as a caregiver of an autistic child. This one-time interview will last 60-90 minutes in Spanish or English.

Who Do I Contact?

If you are interested in participating in the study or want to learn more please contact our study team at stbevan [at] nursing.upenn.edu or 484-918-0136.

Eligibility & Criteria

IRB #:
23-021086
Official Title:
Pathways to Autism Diagnosis, Lived Experience of Latinx Immigrant Families
Study Phase:
Pilot
Eligible Age Range:
3 - 17 Years
Gender:
All
Study Categories:
Downloadable Resources:

RECRUITMENT FLIER- ENGLISH

RECRUITMENT FLIER- SPANISH

Visit Criteria

Study visits can take place in-person or via secure video link. 

Leaders

Margaret Souders

Stacey Bevan