The Clinical and Translational Science Award (CTSA)@Children's Hospital of Philadelphia provides CHOP investigators with resources and support to overcome barriers in conducting clinical and translational science.
As the administrative manager of the Clinical In Vivo Gene Therapy (CIGT) group, Sarah McCague manages a team of CRCs who are critical liaisons between families and the hospital.
The study aims to determine the reasons why parents decline consent in PICU research by formally collecting these responses, grouping them into categories, and analyzing the data.
The study aims to investigate parental (and/or legally authorized caregiver) motivations for choosing to participate, or not, in research for their child by using qualitative semi-structured interviews.
