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Food Allergy Anxiety
The goal of this study is to identify and measure anxiety symptoms in children and adolescents with food allergy. We are looking for families of children with IgE-mediated food allergies between 8 and 18 years of age to participate.
Friedreich Ataxia Clinical Outcomes Measures
This is a multicenter natural history and clinical measure study.
FVRx + Home Plate
This study aims to support families with buying, cooking, and eating fresh fruits and vegetables at home! The goal of this study is to learn how fruit and vegetable vouchers and virtual cooking classes and resources affect families' experiences with home cooking and food shopping, as well as caregiver mental health.
Gene Therapy Trial for Hemophilia A
This clinical trial study uses a modified adeno-associated virus (AAV) to carry the human factor VIII gene to the liver.
This Phase 2 clinical research study is evaluating the safety and effectiveness of a once-daily oral investigational medicine that may improve anemia and reduce the need for red blood cell (RBC) transfusions among some patients who are chronically transfused.
Gluten-Free Diet Adherence in Children with Celiac Disease
This study looks to assess how celiac disease affects the quality of life of patients between the ages of 13-18.
The Harmony Valve study is for patients in need of pulmonary valve replacement.
Head Start 4 Protocol for Children with Medulloblastoma and CNS Embryronal Tumors
Children (less than 10 years of age) are eligible if they have been diagnosed with either a medulloblastoma tumor or CNS embryonal tumors of the brain or spinal cord.
Health Disparities in Pediatric Sleep
This study wants to determine if racial differences in children that snore are related to factors that can be changed, such as child sleep habits, family factors, and provider unintentional racial bias.
HGB-212: Phase 3 Beta Thalassemia LentiGlobin BB305 Gene Therapy Trial
Individuals with a certain type of beta thalassemia that is treated with regular transfusions, and who are 50 years old and younger, may be able to participate.