Dr. Kassam-Adams’ current research focuses on data sharing and data harmonization in traumatic stress research, and on the development and evaluation of tools that enable trauma-informed and family-centered care in pediatric health settings. Current National Institutes of Health-funded projects include an eHealth tool incorporating game-based screening of child symptoms and functioning, and online training for providers in non-pediatric emergency departments.
Dr. Walter's research in the pediatric cardiac intensive care unit includes the customization of an interprofessional team and family-based intervention to improve communication about goals of care, and teamwork and evaluation of the intervention. Knowledge gained from this research will guide future interventions to improve outcomes for pediatric patients with advanced heart disease and their families.
Dr. Lisanti's research focuses on understanding the influence of individualized family-centered developmental care (IFDC) on infants with congenital heart disease and their families. She is investigating the biobehavioral mechanisms that influence parent stress and mental health symptoms, with the ultimate goal of discovering biological and psychosocial links between parent mental health and child developmental outcomes.
Amy Kratchman has been working with clinicians and researchers since 2008 as a family representative. She is the mother of three children with special healthcare needs. As a family consultant at Children's Hospital of Philadelphia, Kratchman co-leads numerous family-centered care initiatives.