Developmental Behavioral Pediatrics Research Network Research Overview

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The Developmental Behavioral Pediatrics Research Network (DBPNet) currently has two research nodes, one for autism spectrum disorder (ASD) and one for attention-deficit/hyperactivity disorder (ADHD). Each node has an interdisciplinary team of five to seven leading researchers from DBPNet sites, as well as node members including clinicians and at least two parents. The nodes bring together individuals with clinical expertise, research expertise, and lived-experience to develop research protocols and/or grant applications to address priority research areas in a manner that is feasible, acceptable, and innovative.

Previous DBPNet studies demonstrated that both stimulants and alpha-2 agonists are commonly used to treat preschool aged children with attention-deficit/hyperactivity disorder (ADHD). This study used electronic health record (EHR) review to evaluate the effectiveness and adverse effects of stimulants or alpha-2 agonists when used to treat preschool children with ADHD. The EHRs for 503 preschool aged children across seven sites were reviewed. In addition to effectiveness and side effects, demographic data, comorbid diagnoses, and rating scales collected at the initial diagnostic evaluation were extracted for the EHR.

Participating Sites: Boston Children's Hospital, Children's Hospital of Philadelphia, University of Oklahoma Health Sciences Center, Children's Hospital Los Angeles, University of Colorado, Medical University of South Carolina, Stanford University

Resource: Medication Treatment Data Collection for Preschool ADHD Study

Related Publications:

Mittal S, Bax A, Blum NJ, Shults J, Barbaresi W, Cacia J, Deavenport-Saman A, Friedman S, LaRosa A, Loe IM, Tulio S, Vanderbilt D, Harstad E, DBPNet Steering Committee; DBPNet Steering Committee. Receipt of Behavioral Therapy in Preschool-Age Children with ADHD and Coexisting Conditions: A DBPNet Study. J Dev Behav Pediatr. 2023 Dec; 44(9):e651-e656. Epub 2023 Sep 26. PMID: 37751569

Blum NJ, Shults J, Barbaresi W, Bax A, Cacia J, Deavenport-Saman A, Friedman S, Loe IM, Mittal S, Vanderbilt D, LaRosa A, Harstad E. Do Externalizing and Internalizing Symptoms Moderate Medication Response in Preschool Attention-Deficit/Hyperactivity Disorder? A DBPNet Study. J Dev Behav Pediatr. 2023 Sep; 44(7):e447-e454. Epub 2023 Aug 8. PMID: 37696030

Loe IM, Blum NJ, Shults J, et al.. Adverse Effects of α-2 Adrenergic Agonists and Stimulants in Preschool-Age ADHD: A DBPNet Study. J Pediatr. 2023 Jan; S0022-3476(23)00021-5. PMID: 36649794

Deavenport-Saman A, et al. Association of Coexisting Conditions, Attention-Deficit/Hyperactivity Disorder Medication Choice, and Likelihood of Improvement in Preschool-Age Children: A Developmental Behavioral Pediatrics Research Network Study. J Child Adolesc Psychopharmacol. 2022 Aug;32(6):328-336. PMID: 35787014​

Harstad E, Shults J, Barbaresi W, Bax A, Cacia J, Deavenport-Saman A, Friedman S, LaRosa A, Loe I, Mittal S, Vanderbilt D, Blum N. Preschool Attention-Deficit/Hyperactivity Disorder and Telephone Medication Management at Developmental-Behavioral Pediatric Network Sites. J Dev Behav Pediatr. 2021 Aug 1;42(6):481-484. PMID: 33929397.

Harstad E, Shults J, Barbaresi W, Bax A, Cacia J, Deavenport-Saman A, Friedman S, LaRosa A, Loe IM, Mittal S, Tulio S, Vanderbilt D, Blum NJ. α2-Adrenergic Agonists or Stimulants for Preschool-Age Children With Attention-Deficit/Hyperactivity Disorder. JAMA. 2021 May 25;325(20):2067-2075. PMID: 33946100; PMCID: PMC8097628.

Related Presentations:

Harstad E, Barbaresi W, Bax A, Deavenport-Saman A, Friedman S, Blum N. Medication Used for Initial ADHD Medication Treatment of Preschoolers Seen within DBPNet Centers. Society for Developmental and Behavioral Pediatrics, Washington DC: Sep. 13-16, 2019.

Harstad E. Methylphenidate More Effective Than Guanfacine in Preschoolers with ADHD: A DBPNet Study. Society for Developmental and Behavioral Pediatrics, Virtual: Oct. 8-12, 2020.

Deavenport-Saman A. Coexisting Conditions Related to Medication Use and Dose to Achieve Effectiveness in Preschoolers with ADHD: A DBPNet Study. Society for Developmental and Behavioral Pediatrics, Virtual: Oct. 8-12, 2020.

Loe I. Side Effects of Methylphenidate and Guanfacine in Preschoolers with ADHD: A DBPNet Study. Society for Developmental and Behavioral Pediatrics, Virtual: Oct. 8-12, 2020.

Harstad E, et al. Methylphenidate More Effective Than Guanfacine in Preschoolers with ADHD: A DBPNet Study. Presented at Pediatric Academic Societies 2021 Virtual; May 2021.

Blum N, et al. Influence of Coexisting Conditions on Medication Choice and Effectiveness in Preschool Aged Children with ADHD: A DBPNet Study. Presented at: Society for Developmental and Behavioral Pediatrics 2021 Virtual Meeting: Oct. 21-25, 2021.

Mittal S, et al. Receipt of Behavioral Therapy in Preschool-Age Children with ADHD: A Developmental Behavioral Pediatrics Research Network (DBPNet) Study. Presented at: Pediatric Academic Societies 2022 Meeting; April 21-25, 2022; Denver, CO.

Blum, N., Shults, J., Cacia, J., Barbaresi, W., Mittal, S., Loe, I., Deavenport-Saman, A., Ami Bax, A., Friedman, S., Vanderbilt; D., LaRosa, A., Harstad, E. Does ADHD Severity, Externalizing, or Internalizing Symptoms Moderate Medication Response in Preschool Aged Children with ADHD? A DBPNet Study. Society for Developmental and Behavioral Pediatrics Conference, Denver, CO: October 2022.

Previous DBPNet studies demonstrated wide variation in the use of the Autism Diagnostic Observation Schedule, Second Edition (ADOS-2) in the evaluation of children for autism spectrum disorder (ASD) across sites. This prospective, multisite study investigates the frequency with which the results of an ADOS-2 alter the diagnostic conclusions of developmental-behavioral pediatricians (DBPs) evaluating a child for possible ASD and evaluates factors that are associated with the likelihood that the results of an ADOS-2 will alter DBPs’ clinical diagnosis of ASD. The goal of this study is to identify the clinical situations in which an ADOS is most helpful, in order to be able to improve the efficiency of ASD evaluations.

Participating Sites: Albert Einstein College of Medicine, Boston Children's Hospital, Children's Hospital Colorado, Children's Hospital Los Angeles, Rainbow Babies' and Children's Hospital, University of Arkansas, University of California Davis-MIND Institute and Children's Hospital of Philadelphia.

Resource: ADOS Data Collection Forms

Related Publications:

Barbaresi W, Cacia J, Friedman S, Fussell J, Hansen R, Hofer J, Roizen N, Stein REK, Vanderbilt D, Sideridis G. Clinician Diagnostic Certainty and the Role of the Autism Diagnostic Observation Schedule in Autism Spectrum Disorder Diagnosis in Young Children. JAMA Pediatr. 2022 Dec 1;176(12):1233-1241. PMID: 36251287

Related Presentations:

Barbaresi W. The Role of the Autism Diagnostic Observation Schedule in the Diagnosis of Autism by Developmental-Behavioral Pediatrician: A DBPNet Study. Society for Developmental and Behavioral Pediatrics, Virtual: Oct. 8-12, 2020.

Barbaresi W, et al. The Role of the Autism Diagnostic Observation Schedule in the Diagnosis of Autism by Developmental-Behavioral Pediatrician: A DBPNet Study. Presented at: Pediatric Academic Societies 2021 Virtual Meeting; May 2021.

Barbaresi W, Cacia J, Friedman S, Fussell J, Hansen R, Hofer J, Roizen N, Sideridis G, Stein R, Vanderbilt D. Child, Clinician and Assessment Characteristics Associated with Consistency of Autism Diagnosis by Developmental-Behavioral Pediatricians: A DBPNet Study. Presented at: Society for Developmental and Behavioral Pediatrics 2021 Virtual Meeting; Oct. 21-25, 2021; and Pediatric Academic Societies 2022 Meeting; April 21-25, 2022; Denver, CO.

Studies conducted by DBPNet and other groups have demonstrated that many children with ADHD are treated with medications without ever receiving behavioral interventions. This is particularly problematic for preschool aged children where practice guidelines recommend providing behavioral interventions prior to prescribing medications. This study is a small pilot randomized control trial assessing the feasibility, acceptability, and preliminary efficacy of an online behavioral treatment module integrated into an existing evidence-based ADHD web-based portal (mehealth for ADHD software). The web-based portal has the potential to improve access to evidence-based behavioral treatment strategies for preschool children with ADHD.

Participating Sites: Boston Children's Hospital, Cincinnati Children's Hospital and Medical Center

Related Presentations:

Froehlich TE, Harstad E, Abimosleh S, Epstein JN. Addressing Preschool ADHD with On-Line Behavioral Tools: A DBPNet Pilot Study. Pediatric Academic Societies, Denver CO. May 2022.

Studies conducted by DBPNet and other groups have demonstrated that many children with ADHD are treated with medications without ever receiving behavioral interventions. Families living in low-income communities often have the most difficulty accessing behavioral interventions. This pilot study aims to refine the process and provide preliminary data on the efficacy of behavioral parent training delivered by peer advocates working at community-based Family Resources Centers via telehealth. The intervention has the potential to improve the acceptability of, and access to, behavioral parent training for individuals living in underserved communities.

Participating Sites: New York University, Cincinnati Children's Hospital and Medical Center

Family Navigation to Reduce Disparities in Timely Autism Diagnosis and Access to Early Intervention

Project EARLY was a multisite, randomized clinical trial to determine if a family navigator can improve access to autism spectrum disorder (ASD) diagnostic and treatment services (including early intervention services) and improve outcomes for children who screen positive for ASD at pediatric primary care centers serving low income communities.

Participating Sites: Children's Hospital of Philadelphia, Boston University School of Medicine, Boston Medical Center, Yale University

Related Publications:

Feinberg E, Stransky ML, Augustyn M, Broder-Fingert S, Bennett A, Weitzman C, Kuhn J, Chu A, Cabral HJ, Fenick AM, Blum NJ. Effect of Family Navigation on Participation in Part C Early Intervention. Acad Pediatr. 2023 Jul; 23(5):904-912. Epub 2023 Mar 31. PMID: 37004879

Feinburg F, Augustyn M, Broder-Fingert S, Bennett A, Weitzman C, Kuhn J, Hickey E, Chu A, Levinson J, Sandler Eilenberg J, Silverstein M, Cabral HJ, Patts G, Diaz-Linhart Y, Rosenberg J, Miller J, Guevara JP, Fenick AM, Blum N. Effect of family navigation on diagnostic ascertainment among children at risk for autism: A randomized clinical trial from DBPNet. JAMA Pediatr. 2021 Jan 11. Online ahead of print. PMID: 33427861

Broder-Fingert S, Qin S, Goupil J, Rosenberg J, Augustyn M, Blum N, Bennett A, Weitzman C, Guevara JP, Fenick A, Silverstein M, Feinberg E. A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder. Autism. 2019 July;23(5):1288-1299. PMID: 30404548

Related Presentations:

Sandler J, Feinberg E, Broder-Fingert S, Augustyn M, Weitzman C, Bennett A, Credle M, Keys S. Impact of Early Intervention Services on Parental Stress Among Low-Income Urban Families Who Have a Child at Risk for Autism Spectrum Disorder. American Public Health Association Annual Meeting, Denver, Colorado: Nov. 1, 2016.

Feinberg, et al. Leveraging Pediatric Primary Care Systems to Address Disparities in Autism Diagnosis: Implementing Family Navigation. Pediatric Academic Societies, Toronto, Canada: May 5, 2018.

Broder-Fingert S, Feinberg E, Augustyn M, Weitzman C, Bennett A, Fenick A, Guevara J, Blum NJ. A Process Evaluation of Family Navigator Implementation: A DBPNet study. Pediatric Academic Societies, Toronto, Canada: May 5, 2018.

Hickey E, Broder-Fingert S, Kuhn J, Goupil J, Chu A, Rosenberg J, Augustyn M, Feinberg E. Child Impact on the Family and Parent Social Support in Families of Children at Risk for Autism Spectrum Disorder. Pediatric Academic Societies, Baltimore, Maryland: April 28, 2019.

Feinberg E, Broder-Fingert S, Bennett Palladino AE, Weitzman C, Chu A, Sandler J, Cabral H, Patts G, Augustyn M, Abraham M, Guevara J, Credle M, Fenick A, Blum NJ. A Multi-Site Randomized Control Trial of Family Navigation’s Effect on Diagnostic Ascertainment Among Children at Risk for Autism: A DBPNet Study. Pediatric Academic Societies, Baltimore, Maryland: April 29, 2019.

Weitzman C, Voliovitch Y, Gupta A, Fenick A, Leventhal J, Augustyn M, Broder-Fingert S, Feinberg E, Blum NJ, Shabanova V. Parent Stress Prior to an Autism Spectrum Disorder (ASD) Diagnostic evaluation: A DBPNet Study. Pediatric Academic Societies, Baltimore, Maryland: April 28, 2019.

Feinberg E, Broder-Fingert S, Bennett Palladino AE, Weitzman C, Chu A, Sandler J, Cabral H, Patts G, Augustyn M, Abraham M, Guevara J, Credle M, Fenick A, Blum NJ. A Multi-Site Randomized Control Trial of Family Navigation’s Effect on Diagnostic Ascertainment among Children at Risk for Autism: A DBPNet Study. International Society for Autism Research, Montreal, Canada: May 1- 4, 2019.

Hickey E, Broder-Fingert S, Kuhn J, Goupil J, Chu A, Rosenberg J, Augustyn M, Feinberg E. Child Impact on the Family and Parent Social Support in Families of Children at Risk for Autism Spectrum Disorder. International Society for Autism Research, Montreal, Canada: May 1- 4, 2019.

 

Enhancing Care of Children With Complex Autism

The aim of this randomized clinical trial was to assess the effect of an educational intervention on shared decision-making in the care of children with complex autism spectrum disorder. The educational intervention targeted developmental-behavioral pediatrics fellows and young faculty.

Related Publications:

Huffman LC, Hubner LM, Hansen RL. Autism-Focused Online Training in Shared Decision-Making: A Randomized Controlled Trial. J Dev Behav Pediatr. 2021 Apr 1;42(3):173-181. PMID: 33759846

Related Presentations:

Huffman L, Hubner L, Hansen R. DBPFellows Perceptions of Shared Decision-Making: A DBPNet Medical Education Study. Pediatric Academic Societies Meeting, San Francisco, California: May 2017.

Huffman LC, Hubner LM, Hansen RL. Web-based Training in Shared Decision-Making: A DBPNet Medical Education RCT. Society for Developmental and Behavioral Pediatrics Annual Meeting, Cleveland, Ohio: Oct. 13-16, 2017

 

Initial Validation of PROMIS Measures for Peer Relationship and Psychological Distress in Youth With Autism Spectrum Disorders

The purpose of the study Initial Validation of PROMIS Measures for Peer Relationship and Psychological Distress in Youth 12-17 Years Old With Autism Spectrum Disorders Who Read at or Above a Third Grade Level was to investigate the validity of two measures developed as part of the NIH Patient Reported Outcome Measurement Information System (PROMIS®) initiative when completed by youth 12 to 17 years old with ASD reading at a third grade level and by their parents.

Related Presentations:

Cheema-Hasan A, Gershon N, Yatchmink Y, Ramos E, Huntington N, Tucker C, Forrest C, Blum N, High P. Self-Report Measures for Peer Relationships in Literate Youth With Autism Spectrum Disorders: Can PROMIS® Deliver? SDBP Annual Meeting, Savannah, Georgia: Sept. 19, 2016.

Gershon N, Cheema-Hasan A, Ramos E, Yatchmink Y, Blum N, Forrest C, Tucker C, High P. Psychological Stress in Youth on the Spectrum: Is the PROMIS® Psychological Stress Experiences Measure Feasible and Valid in Literate Youth With ASD? SDBP Annual Meeting, Savannah, Georgia: Sept. 19, 2016.

 

Preliminary Validation of Selected Pediatric PROMIS® Measures in Children With ASD: A DBPNet Study

This study team investigated the validity of three measures (peer relationships, psychological stress, and family involvement) developed as part of the NIH Patient Reported Outcome Measurement Information System (PROMIS®) initiative when completed by parents of children 5 to 12 years old with autism spectrum disorders.

Participating Sites: Children's Hospital of Philadelphia, Children's Hospital of Boston, Albert Einstein College of Medicine

Publications:

Schwartz J, Huntington N, Laverdiere M. Toomey M, Bevans K, Blum NJ, Bridgemohan C. Measuring family involvement for children with autism: A DBPNet study. Research in Developmental Disabilities. 2018 Dec;83:18-27. PMID: 30092382

Toomey M, Schwartz J, Laverdiere M, Tucker C, Bevans K, Forrest CB, Blum NJ. Preliminary validation of the PROMIS pediatric parent-proxy peer relationships measure in children with autism spectrum disorder: A DBPNet study. Journal of Developmental and Behavioral Pediatrics. 2016 Nov/Dec;37:724-729. PMID: 27801722. Read a Family Study

Related Presentations:

Toomey ME, Schwartz J, Laverdiere MC, Stein REK, Huntington NL, Silver EJ, Bridgemohan C, Tucker CA, Bevans KB, Forrest CB, Blum NJ. Evaluation of the PROMIS® Pediatric Peer Relationships Measure in Children with Autism Spectrum Disorder: A DBPNet Study. Pediatric Academic Societies, San Diego, California: April 2015.

Schwartz J, Laverdiere MC, Toomey ME, Huntington NL, Bridgemohan C, Stein REK, Silver EJ, Tucker CA, Bevans KB, Forrest CB, Blum NJ. Evaluation of the PROMIS® Pediatric Family Involvement Measure in Children with Autism Spectrum Disorder: A DBPNet Study. Pediatric Academic Societies, San Diego, California: April 2015.

Toomey ME, Schwartz J, Laverdiere MC, Stein REK, Huntington NL, Silver EJ, Bridgemohan C, Tucker CA, Bevans KB, Forrest CB, Blum NJ. Evaluation of the PROMIS® Pediatric Peer Relationships Measure in Children with Autism Spectrum Disorder: A DBPNet Study. (poster symposium) Autism CARES, Washington, D.C.: July 17, 2015.

Laverdiere MC, Schwartz J, Toomey ME, Silver EJ, Stein REK, Bevans KB, Forrest CB, Tucker CA, Bridgemohan C, Huntington NL, Blum NJ. Assessing Psychological Stress Experiences in Children with Autism Spectrum Disorder: A DBPNet Study. Pediatric Academic Societies, San Diego, California: April 2015.

 

Maternal Immune Status and Autism Severity

The study team investigated whether mothers of children with autism spectrum disorder have specific antibodies in their blood that predict the severity of autism in their children. They conducted the study to determine if findings at one DBPNet site could be replicated at two other sites.

Related Publications:

Angkustsiri K, Fussell JJ, Bennett A, Schauer J, Ramirez-Celis A, Hansen RL, Van de Water J. Pilot Study of Maternal Autoantibody-Related Autism. J Dev Behav Pediatr. 2022 Oct-Nov 01;43(8):465-471. PMID: 35943360

Participating Sites: Children's Hospital of Philadelphia, University of California at David M.I.N.D. Institute, University of Arkansas for Medical Sciences

Resource: Maternal Immune Study Database

Related Presentations:

Angkustsiri K, Fussell JJ, Bennett A, Kaluzhny R, Rodriguez, Tancredi DJ, Blum NJ, Hansen RL, Van de Water J. Maternal Autoantibody Related Autism: A multi-site DBPNet study. Pediatric Academic Societies, Toronto, Canada: May 5, 2018.

 

Extracting Electronic Health Record Data on Use of Psychotropic Medications in DBPNet: Costs, Feasibility, and Practice Variation

This electronic data collection study extracted data on the diagnoses children received and the psychotropic medications prescribed at DBPNet sites for visits between Jan. 1, 2010, and Dec. 31, 2011. The researchers conducted the study to determine the feasibility of using EHR data for research on the clinical practices and variation in clinical practices across sites.

Participating Sites: Children’s Hospital of Philadelphia, Boston Medical Center, Hasbro Children’s Hospital, Cincinnati Children's Hospital Medical Center

Resource: EHR Data Capture in DBPNet BMC

Publications:

Walls M, Curtin C, Phillips S, Eliasziw M, Jackel C, Must A, Bandini L, Broder-Fingert S. Developmental and behavioral pediatricians’ diagnosis and coding of overweight and obesity in children with autism spectrum disorder. Journal of Developmental and Behavioral Pediatrics. 2020 May;41(4):258-264. PMID: 32040046

Blum NJ, Shults J, Harstad E, Wiley S, Augustyn M, Meinzen-Derr JK, Wolraich ML, Barbaresi WJ. Common use of stimulants and alpha-2 agonists to treat preschool attention-deficit hyperactivity disorder: A DBPNet study. Journal of Developmental & Behavioral Pediatrics. 2018 Sept;39(7):531-537. PMID: 29851669

Jackel C, Shults J, Wiley S, Meinzen-Derr J, Augustyn M, Blum NJ. Factors associated with developmental behavioral pediatricians prescribing psychotropic medication to children with autism spectrum disorder: A DBPNet study. Journal of Developmental and Behavioral Pediatrics. 2017 Oct;38(8):584-592. PMID: 28816917

Presentations:

Jackel C, Shults J, Wiley S, Meinzen-Derr J, et al. Factors Associated with Psychotropic Medication Use by DBPs in Children with ASD: A DBPNet Study Using Electronic Health Records. Pediatric Academic Societies, Baltimore, Maryland: May 2, 2016.

Blum NJ, Shults J, Harstad E, Wiley S, Augustyn M, Meinzen-Derr J, Wolraich M, Barbaresi W. Alpha-2 Agonists are Commonly Used to Treat Preschool ADHD at Two DBPNet Sites. Society for Developmental and Behavioral Pediatrics Annual Meeting, Cleveland, Ohio. Oct. 14, 2017.

Blum NJ, Shults J, Harstad E, Wiley S, Augustyn M, Meinzen-Derr J, Wolraich M, Barbaresi W. Association of Age and Comorbidity with Psychotropic Medications Prescribed for Preschool Aged Children with ADHD: A DBPNet Study. Pediatric Academic Societies, Toronto, Canada: May 5, 2018.

Mittal S, LaRosa A, Loe I, Blum N, Tulio S, Vanderbilt D, Harstad E. Use of Rating Scales and Complexity of Presentation for Preschoolers Treated with Medication for ADHD: a Developmental-Behavioral Pediatrics Research Network (DBPNet) Study. Society for Developmental and Behavioral Pediatrics, Washington DC: Sept. 13-16, 2019.

Grater J. Medication Treatment of Attention-Deficit/Hyperactivity Disorder in Children with Autism Spectrum Disorder and Intellectual Disability: DNPNet Data. Society for Developmental and Behavioral Pediatrics, Virtual: Oct. 8-12, 2020.

 

What is the Nature of Referrals to Outpatient Services at DBPNet sites at Academic Medical Centers?

The study team aimed to identify the reasons that children get referred to developmental and behavioral pediatricians. They obtained information on the diagnoses the children received, assessments completed or recommended, and length of the visits at 12 DBPNet sites.

Participating Sites: Children’s Hospital of Philadelphia, Boston Medical Center, Children's Hospital of Boston, Stanford University School of Medicine, University of Arkansas for Medical Sciences, University of California at Davis M.I.N.D. Institute, Hasbro Children's Hospital, Rainbow Babies and Children's Hospital, Cincinnati Children's Hospital Medical Center, Albert Einstein College of Medicine, Yale University School of Medicine, The University of Oklahoma Health Sciences Center

Resources: DBPNet Referral Encounter and DBPNet Referral Provider Survey

Publications:

High P, Silver EJ, Stein REK, Roizen N, Augustyn M, Blum N; DBPNet Steering Committee. Do Referral Factors Predict a Probable Autism Spectrum Disorder Diagnosis? A DBPNet Study. Acad Pediatr. 2021 Jun 5:S1876-2859(21)00277-1. Epub ahead of print. PMID: 34098175.

Augustyn M, Silver EJ, Blum NJ, High P, Roizen N, Stein REK. DBP Evaluations in DBPNet Sites: Is race/ethnicity a significant factor in care? Journal of Developmental & Behavioral Pediatrics. 2020 Jan;41(1):23-30. PMID: 31335580

Stein REK, Silver EJ, Augustyn MC, Blum NJ, High P, Roizen NJ. Private versus medicaid developmental behavioral referrals: Do they differ? A DBPNet Study. Journal of Developmental and Behavioral Pediatrics. 2018 May;39(4): 325-334. PMID: 29557857

Roizen N, Stein REK, Silver EJ, High P, Augustyn M, Blum N. Academic Developmental-Behavioral Pediatric Faculty at Developmental-Behavioral Pediatric Research Network Sites: Changing Composition and Interests. Journal of Developmental and Behavioral Pediatrics: 2017; 38 (9) 683-689 PMID:28914731

Related Presentations:

Augustyn M, Silver EJ, Blum NJ, High P, Roizen N, Stein R. Consulting With an Academic DBP: Does Race Matter? Pediatric Academic Societies, Baltimore, Maryland: April 30, 2016.

Roizen NJ, Stein REK, Silver EJ, High P, Blum NJ. A DBPNet Study of Academic Developmental-Behavioral Pediatricians (DBP): Workforce Activity Survey. Pediatric Academic Societies, Baltimore, Maryland: April 30, 2016.

Stein REK, Silver EJ, Augustyn MC, High PH, Roizen NJ. How Different Are Privately Insured and Medicaid Referrals? A DBPNet Study. Pediatric Academic Societies, Baltimore, Maryland. April 30, 2016.

High PC, Augustyn M, Silver EJ, Stein REK, Blum NJ, Roizen N. Children Referred to DBPs at Academic Medical Centers to Rule Out an ASD: What Do They Have if Not an ASD? (Platform) Society for Developmental and Behavioral Pediatrics Annual Meeting, Savannah, Georgia. Sept. 18, 2016.

Roizen NJ, Stein REK, Silver EJ, High P, Augustyn MC, Blum NJ, DBPNet Steering Committee. A DBPNet Study of Academic Developmental-Behavioral Pediatricians (DBP): Workforce Activity Survey. Society for Developmental and Behavioral Pediatrics Annual Meeting, Savannah, Georgia: Sept. 19, 2016.

High PC, Silver EJ, Roizen N, Blum NJ, Augustyn M, Stein REK. Children Referred to DBPs at Academic Medical Centers to Rule Out an ASD: Can We Predict Who Will Receive an ASD Diagnosis? (poster) Society for Developmental and Behavioral Pediatrics Annual Meeting, Savannah, Georgia: Sept. 18, 2017.

High PC, Silver EJ, Augustyn M, Blum NJ, Nancy Roizen N. Are DBP New Patient Evaluations for ASD Economically Feasible? A DBPNet study. Society for Developmental and Behavioral Pediatrics Annual Meeting, Cleveland, Ohio: Oct. 13-16, 2017.

Augustyn M, et al. Relationship Between Immigration Status and Perceived Stress Around a Child’s Developmental Concerns. Pediatric Academic Societies, Toronto, Canada: May 5, 2018.

High PC, Silver EJ, Augustyn M, Blum NJ, Stein REK, Roizen N, and the DBPNet Steering Committee. The gap between clinical coding for new patient autism evaluations by Developmental-Behavioral Pediatricians and time spent: A DBPNet study. Pediatric Academic Societies, Toronto, Canada: May 5, 2018.

Cuffman, et al. An Exploration of Patients Referred for Speech and Language Concerns: A DBPNet Study. Pediatric Academic Societies, Toronto, Canada: May 5, 2018.

High PC, Silver EJ, Augustyn M, Blum NJ, Nancy Roizen N, Stein REK. Are DBP New Patient Evaluations for ASD Supported Financially? A DBPNet Study. AUCD, Washington, DC: Nov. 12, 2018.

Stein REK, Silver EJ, Roizen N, High PC, Augustyn M, Blum NJ. Children Referred for DBP Evaluation with ADHD Concerns: A DBPNet Study. Pediatric Academic Societies, Baltimore, Maryland: April 29, 2019.

Cuffman C, Silver EJ, Roizen N, Augustyn M, Blum NJ, High PC, Stein REK. Comparison of DBP Evaluations for Patients from English Only vs Multilingual Homes: A DBPNet Study. Pediatric Academic Societies, Baltimore, Maryland: April 29, 2019.

Cuffman C, Silver EJ, Roizen N, Augustyn M, Blum NJ, High PC, Stein REK. Comparison of DBP Evaluations for Patients from English Only vs Multilingual Homes: A DBPNet Study. Society for Developmental and Behavioral Pediatrics, Washington DC: Sept. 13-16, 2019.

 

Practice Variation in Assessment and Management of Attention Deficit Hyperactivity Disorder and Autism Spectrum Disorders by Developmental Pediatricians

Twelve DBPNet sites conducted this study, in order to identify similarities and differences in the assessment and treatment of Attention-Deficit/Hyperactivity Disorder and Autism Spectrum Disorder across the sites.

Participating Sites: Children's Hospital of Philadelphia, University of California at Davis M.I.N.D. Institute, Yale University School of Medicine, Stanford University School of Medicine, Rhode Island Hospital, The University of Oklahoma Health Sciences Center, Cincinnati Children's Hospital Medical Center, Boston Medical Center, Albert Einstein College of Medicine, Children's Hospital of Boston, Rainbow Babies and Children's Hospital, Arkansas Children's Hospital

Resources: DBPNet Survey-Diagnostic & Follow-up and DBPNet Survey-Clinician Survey

Publications:

Grater JE, Muniz EI, Silver EJ, Blum NJ, Shults J, Stein REK. Treatment of Attention-Deficit/Hyperactivity Disorder with Medication in Children with Autism Spectrum Disorder With and Without Intellectual Disability: A DBPNet Study. J Autism Dev Disord. 2022 May 28. PMID: 35633446

Won DC, Feldman HM, Huffman LC. Sleep problem detection and documentation in children with ASD and ADHD by developmental-behavioral pediatricians: A DBPNet study. Journal of Developmental & Behavioral Pediatrics. 2019 Jan;40(1):20-31. PMID: 30589766

Hansen RL, Blum NJ, Gahman A, Shults J, on behalf of the DBPNet Steering Committee. Diagnosis of autism spectrum disorder by developmental-behavioral pediatricians in academic centers: A DBPNet study. ;Pediatrics. 2016 Feb; 137(s2):s79-89. PMID: 26908481 Read a Family Summary

Harstad EB, Blum NJ, Gahman A, Shults J, Chan E, Barbaresi W, for the DBPNet Steering Committee. Management of attention deficit hyperactivity disorder by developmental-behavioral pediatricians: A DBPNet study. J Dev Behav Pediatr. 2016 Sept;37(7):541-547. PMID: 27429355 Read a Family Summary

Feldman HM, Blum NJ, Gahman A, Shults J, on behalf of the DBPNet Steering Committee. Diagnosis of attention-deficit/hyperactivity disorder by developmental pediatricians in academic centers: A DBPNet study. Academic Pediatrics. 2015 May; 15:282288. PMID: 25441653 Read a Family Summary

Related Presentations:

Blum NJ. Identifying Variation in Developmental-Behavioral Pediatric Practices within DBPNet: A First Step to Improving Care. Combating Autism Act Initiative Meeting, Washington, D.C.: May 31, 2013.

Feldman HM, Blum NJ, Gahman A, Shults J and the DBPNet Steering Committee. Diagnosis of Attention Deficit Hyperactivity Disorder by Developmental Pediatricians in DBPNet. Annual Meeting of the Society for Developmental-Behavioral Pediatrics, Baltimore, Maryland: September 2013.

Hansen RH, Blum NJ, Shults JS, Gahman A. Co-Morbidity and Etiologic Evaluation Associated with ASD Diagnostic Assessment: A DBPNet Study. Pediatric Academic Societies Meeting, Vancouver, Canada: May 2014.

Hansen RH, Blum NJ, Shults JS, Gahman A. Autism Assessments by Developmental Behavioral Pediatricians at Academic Medical Centers: A DBPNet Study. Pediatric Academic Societies Meeting, Vancouver, Canada: May 2014.

Harstad E, Blum NJ, Gahman A, Shults J, Chan E, Barbaresi W. Management of Attention-Deficit/Hyperactivity Disorder by Developmental-Behavioral Pediatricians: A DBPNet Study. Annual Meeting of the Society for Developmental-Behavioral Pediatrics, Nashville, Tennessee. September 2014.

Kralovic S, Roizen N, Blum NJ, Gahman A, Shults J, on behalf of the DBPNet Steering Committee. A DBPNet Study of Autism Spectrum Disorder Follow-up Visits: Is Complexity Related to the Length of the Visit? Pediatric Academic Societies, San Diego, California: April 2015.

Kralovic S, Roizen N, Blum NJ, Gahman A, Shults J, on behalf of the DBPNet Steering Committee. A DBPNet Study of Autism Spectrum Disorder Follow-up Visits: Is Complexity Related to the Length of the Visit? (poster symposium) Autism CARES, Washington D.C.: July 17, 2015.

Won DC, Feldman HM, Huffman LC. Documentation of sleep problems in children with ASD and ADHD by developmental-behavioral pediatricians in DBPNet. Society for Developmental and Behavioral Pediatrics Annual Meeting, Savannah, Georgia: Sept. 19, 2016.

 

Research Training in Developmental-Behavioral Pediatrics Fellowship Training Programs

Developmental-Behavioral Pediatric fellowship program directors participated in surveys to determine the research training experiences, barriers to research training, and research training outcomes in their training programs.

Participating Sites: Children's Hospital of Philadelphia, Boston Medical Center, Children's Hospital of Boston, Stanford University School of Medicine, University of Arkansas for Medical Sciences, University of California at Davis M.I.N.D. Institute, Cincinnati Children's Hospital Medical Center, Albert Einstein College of Medicine, Yale University School of Medicine, The University of Oklahoma Health Sciences Center, Children's Hospital of Los Angeles, Children's Hospital of Colorado

Publications:

Wiley S, Schonfeld DJ, Fredstrom B, Huffman L.. Research training of developmental-behavioral pediatrics fellows: A survey of fellowship directors by developmental-behavioral pediatrics research network. J Dev Behav Pediatr. 2013 July/Aug.34(6):406–413. PMID: 23838586

Related Presentations:

Schonfeld DJ, Wiley S, Huffman L. Research Experience and Efforts by Developmental-Behavioral Pediatrics Fellows: A Survey of Fellowship Directors by DBPNet. (poster symposium) Society for Developmental-Behavioral Pediatrics, Phoenix, Arizona: Sept. 10, 2012.

 

What Are Important Research Questions in Developmental-Behavioral Pediatrics: The DBPNet Perspective

This study used a modified Delphi procedure to identify the research questions that developmental-behavioral pediatricians, pediatric psychologists (working in the field of DBP), and parents of children with disabilities agreed were the most important research questions to investigate.

Participating Sites: Children’s Hospital of Philadelphia, Boston Medical Center, Children's Hospital of Boston, Stanford University School of Medicine, University of Arkansas for Medical Sciences, University of California at Davis M.I.N.D. Institute, Hasbro Children's Hospital, Rainbow Babies and Children's Hospital, Cincinnati Children's Hospital Medical Center, Albert Einstein College of Medicine, Yale University School of Medicine, The University of Oklahoma Health Sciences Center, Children's Hospital of Los Angeles, Children's Hospital of Colorado

Publications:

Blum NJ, the DBPNet Steering Committee. The Developmental-Behavioral Pediatrics Research Network: another step in the development of the field. J Dev Behav Pediatr. 2012 Jan.33(1):78-83. PMID: 22218018

Blum NJ, Feldman HM, Barbaresi WJ, Schonfeld DJ, Hansen RL, Forrest CB. Research priorities for developmental-behavioral pediatrics: A DBPNet consensus study. J Dev Behav Pediatr. 2012 July/Aug.33(6):509–16. PMID: 22710856

Related Presentations:

Blum NJ, Feldman HM, Barbaresi WJ, Schonfeld DJ, Hansen RL, Forrest CB. Consensus Research Priorities for Developmental-Behavioral Pediatrics: A DBPNet Delphi Study. (poster presentation) Pediatric Academic Societies, Boston, Massachusetts: April 30, 2012.