CaNVAS Resources

CaNVAS recognizes the importance of patient and caregiver input in clinical research and partners with patient advocacy organizations to identify the questions and unmet needs that are most important to those affected by our work. CaNVAS includes advocates as an integral part of defining research priorities and study design. Partnering with patients and integrating their perspectives into our work results in more successful research.

• Lymphatic Education & Research Network
• The Sturge-Weber Foundation
• Lymphangiomatosis & Gorham's Disease Alliance
• Klippel-Trenaunay Support Group
• Cloves Syndrome Community
• CureHHT
• Project FAVA
• Proteus Syndrome Foundation International
• M-CM Network
• Kennedy's Cause
• Vascular Birthmarks Foundation
• National Organization of Vascular Anomalies
• Phace Syndrome Community
• WonderFIL Smiles
• The Patient's Role in Rare Disease Research Podcast - ( Apple Podcast / Spotify )
• CLOVES Syndrome Community
• Project FAVA
• Proteus Syndrome Community
• Vascular Birthmarks Foundation
• CaRAVAN

• COVID-19 information for patients with vascular anomalies.
• COVID-19 Vascular Anomalies Registry

• International Society for the Study of Vascular Anomalies
• The American Society of Pediatric Hematology/Oncology
• Hendren Project
• Vascern