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ARPKD/HRFD Database
This study is now recruiting.
CHOP is partnering with Children's National Medical Center (CNMC) to create a research database of data and blood samples of people who have autosomal polycystic kidney disease (ARPKD) or another hepato/renal fibrocystic disease (HRFD). The purpose is to try to learn more about the causes of these diseases. If you are interested in participating, we will collect data from your medical record to contribute to the database at CNMC. You may also provide an optional blood sample. You may visit arpkdb.org and download the FAQs for you and your child’s doctor or call the CHOP Research Coordinator, Mohini Dutt, at 267-425-3933.
Who Do I Contact?
If you are interested in participating in the study or want to learn more please contact our study team at howarthk [at] chop.edu or 267-425-5541.
Visit Criteria
We will collect data from your medical record to contribute to the database at CNMC. You may also provide an optional blood sample.
