Aneurysms in ARPKD

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The primary goal of this research study is to learn if patients with autosomal recessive polycystic kidney disease (ARPKD) are at risk for brain aneurysms or cardiovascular abnormalities. Participants in this study will involve patients that have a clinical diagnosis of ARPKD. The study will also involve a comparison group of healthy individuals that have no history of kidney or cardiac conditions.

Who Do I Contact?

If you are interested in participating in the study or want to learn more please contact our study team at ARPKD_Studies [at] chop.edu or 267-425-5541.

Eligibility & Criteria

IRB #:
21-018998
Official Title:
Intracranial Aneurysms and Vascular Abnormalities in Autosomal Recessive Polycystic Kidney Disease (ARPKD)
Study Phase:
Pilot
Eligible Age Range:
6 - 99 Years
Gender:
All
Study Categories:
Downloadable Resources:

RECRUITMENT FLIER - PATIENTS

RECRUITMENT FLIER- HEALTHY VOLUNTEERS

Visit Criteria

Participants will make a single 4-5 hour visit at CHOP to complete a:

  • Physical exam and interview
  • Blood draw
  • MRI scan of the brain (no contrast or sedation)
  • Non-invasive heart and blood vessel measurements, including echocardiogram

You will also be given a 24-hour blood pressure monitor to complete at home and return via prepaid mailer.

Healthy Volunteers will make a single 3-4 hour visit at CHOP to complete a:

  • Physical exam and interview
  • Blood draw
  • Non-invasive heart and blood vessel measurements, including echocardiogram

You will also be given a 24-hour blood pressure monitor to complete at home and return via prepaid mailer.

Leader
Erum A. Hartung

Erum A. Hartung, MD, MTR