17-SIBS Study

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The purpose of this research study is to understand the impact of transplant on the quality of life of the entire family including sibling donors, other siblings and parents.

Eligibility & Criteria

IRB #:
20-017792
Study Phase:
Not Applicable
Eligible Age Range:
5 - 17 Years
Gender:
All
Study Categories:

Visit Criteria

The study will enroll male and female subjects between 5 and 17 years of age who are donating hematopoietic stem cells (HSCs) to a sibling, or have a sibling receiving a transplant from a source outside of the family. Their parents will also be asked to participate.  Participants will be asked to complete four telephone interviews during a one-year period at the following timepoints: Shortly before the transplant, 4 weeks after the transplant, 6 months after the transplant, and 1 year after the transplant.  Each interview should take about 15-30 minutes to complete.