17-SIBS Study

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The purpose of this research study is to understand the impact of transplant on the quality of life of the entire family including sibling donors, other siblings and parents.

Who Do I Contact?

If you are interested in participating in the study or want to learn more please contact our study team at CTTSSupportiveCare [at] chop.edu or 267-425-5544.

ClinicalTrials.gov Identifier

NCT03718546

View full trial information on ClinicalTrials.gov

Eligibility & Criteria

IRB #:
20-017792
Official Title:
Identifying Predictors of Poor Health-Related Quality-of-Life among Pediatric Hematopoietic Stem Cell Donors
Study Phase:
Not Applicable
Eligible Age Range:
5 - 17 Years
Gender:
All
Study Categories:

Visit Criteria

The study will enroll male and female subjects between 5 and 17 years of age who are donating hematopoietic stem cells (HSCs) to a sibling, or have a sibling receiving a transplant from a source outside of the family. Their parents will also be asked to participate.  Participants will be asked to complete four telephone interviews during a one-year period at the following timepoints: Shortly before the transplant, 4 weeks after the transplant, 6 months after the transplant, and 1 year after the transplant.  Each interview should take about 15-30 minutes to complete.

Leader
Timothy S. Olson Headshot

Timothy S. Olson, MD, PhD